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Study mode:
on
1
Introduction
2
Acknowledgement
3
Problems
4
Henrietta Lacks
5
HeLa Cell
6
Henriettas case
7
Digital breadcrumbs
8
Code of ethics
9
Mission
10
Key stakeholders
11
Principles
12
Trust
13
Process
14
Summary
15
Data bank
16
Adhoc collections
17
Research projects
18
Thank you
Description:
Explore the critical issues surrounding ethical data infrastructure in this 29-minute conference talk from linux.conf.au 2020. Delve into the challenges of balancing big data research benefits with ethical implications on human subjects in the digital age. Learn about the Digital Observatory case study, illustrating key considerations in building trusted data platforms for academic research. Examine the importance of ethical frameworks, stakeholder engagement, and principled approaches to data collection and usage. Gain insights into the complexities of digitization, data privacy, and responsible research practices across computational, natural, and social sciences.

Building an Ethical Data Infrastructure

linux.conf.au
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