Using Digital Data to Quantify Behavior and Function in ALS and Hasten Drug Development

Using Digital Data to Quantify Behavior and Function in ALS and Hasten Drug Development

Explore the use of digital data in quantifying behavior and function in ALS and accelerating drug development in this comprehensive lecture. Delve into the Helios Platform, ALS Functional Rating, and various digital outcome measures. Learn about passive data monitoring techniques, including BIWI and personal cell phone usage. Examine speech diagnostics, communication participation, and self-entry scales. Discover insights on fatigue, speaking rate, and gait speed through digital ALS monitoring. Investigate the potential of internet search data and digital biomarkers in ALS research. Gain understanding of the challenges and future directions in using digital data for ALS studies, including the Dial and Family Studies. Presented by Dr. James Berry, this talk covers groundbreaking approaches to ALS research and drug development using digital technologies.