Juvenile Onset Systemic Sclerosis: Insights on an Orphan Disease
Explore the intricacies of Juvenile Systemic Sclerosis (jSSc) in this 42-minute webinar presented by ERN ReCONNET. Gain a comprehensive overview of this rare orphan disease, including its clinical presentation, treatment approaches, and outcomes compared to adult-onset systemic sclerosis. Learn about the International Inceptions Cohort for jSSc, established in 2007, and its role in advancing research and patient care. Discover recent insights from the registry, management recommendations for jSSc patients, and key differences between adult and juvenile onset. Dr. Ivan Földvari, a renowned pediatric rheumatology specialist, presents "Insights from the International Inceptions Cohort for Juvenile Systemic Sclerosis and SHARE Recommendations," while Dr. Edoardo Marrani discusses "Comparing Adult and Juvenile Forms: Lessons from the Literature." Engage in a discussion following the presentations to enhance understanding of this challenging condition and raise awareness among healthcare professionals, patients, and caregivers. Read more